Keeping track of everything
Staying on schedule and keeping track of doctors appointments, clinic visits, schedules for taking medicine,
and questions or concerns for your healthcare team are important habits. Here are some tips you may
Many hospitals, clinics, and doctors’ offices provide easy-to-access patient portals where you can get
information, ask questions, and communicate with your doctors.
Writing things down on paper and keeping a binder containing all important medical information is another
way to keep track of appointments and information you want to remember.
The healthcare team: who they are and what they do
A doctor who has special training in internal medicine. An internist works with adult patients to
prevent, diagnose, and treat diseases without using surgery.
A doctor who specializes in diagnosing and treating disorders of the stomach, intestines, and other
organs like the liver.
Hepatologist A doctor who specializes in diseases of the liver.
Radiologist A doctor who has special training in creating and interpreting pictures of areas inside the body.
A doctor who examines the tissues in the body and performs lab tests that help other healthcare
providers make a diagnosis.
A doctor who performs minimally invasive treatments using imaging such as CT scans, ultrasound, MRI,
and/or repeated X-rays called fluoroscopy to help guide procedures.
A doctor who has special training in diagnosing and treating cancers in adults using chemotherapy, hormonal
therapy, biological therapy, and targeted immunotherapy.
A surgeon who has special training in performing surgical procedures in people who are suspected of having
and/or living with cancer.
A registered nurse who has additional education and training in how to diagnose and treat diseases.
In cancer care, a nurse practitioner may help manage the primary care of patients and their families. There
are also advanced practice nurses (APNs).
An experienced professional who guides patients and their families through complex medical systems
and helps them work with the rest of the cancer care team to overcome barriers to care. They can
connect patients and their families to information and resources to help them make informed decisions.
A nurse navigator assists patients from initial diagnosis throughout treatment and follow up.
A professional who specializes in counseling, evaluating and providing services to people who may have
emotional, social, family, or other problems or concerns; therapists and social workers may work in
hospitals, clinics, or private practices within a city, town, or community. Some of these professionals
specialize in helping people with cancer.
Some challenges go beyond your healthcare needs
The following organizations can help you with transportation to get to your appointments or lodging for you
or your caregivers if your healthcare team requires that you stay in the hospital overnight or nearby for your
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and conditions set by the Web site producer. Eisai Inc. makes no claims about the accuracy or any other aspect
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The following organizations can help you with financial assistance, insurance, and insurance-related
questions (for example, enrolling in an insurance plan, questions about a current insurance plan,
appealing marketplace decisions, and more*).
*Go to HealthCare.gov for additional information on
these and many more topics
Educational resources and support available for patients and
Your family, friends, and caregivers can be advocates for you and may provide you with support to
help you adjust to a “new normal.” Listed below are organizations, resources, and support groups
offering education, information, assistance, and advocacy.
Liver Cancer Groups
American Liver Foundation (ALF)
The American Liver Foundation (ALF) is the nation’s largest non-profit organization focused solely on promoting liver health and disease prevention. ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease. Additional information can be found at www.liverfoundation.org or by calling
1 800 GO LIVER (800-465-4837).
Blue Faery: The Adrienne Wilson Liver Cancer Association
Blue Faery’s mission is to prevent, treat, and
cure primary liver cancer, specifically
hepatocellular carcinoma (HCC), through
research, education, and advocacy. The
organization offers free HCC patient
resource guides, an online HCC patient and
caregiver community, an award for HCC
patients, and its website is translated into
Global Liver Institute (GLI)
GLI is a nonprofit advocacy group formed by
patients and operating globally to provide
solutions to improve the lives of individuals
and families impacted by liver disease. To get
information you can use to learn about
healthy eating, simply download their
Cancer Support Community
The Cancer Support Community offers
three areas of support: direct service
delivery, research, and advocacy. The
organization has an international network
of affiliates that offer social and emotional
support for people affected by cancer and
makes community support available
online and over the phone.
As a national nonprofit organization, Family
Reach is dedicated to removing the financial
barriers standing between cancer patients
and their treatment. Family Reach offers
financial education, financial planning,
resource navigation, and emergency relief
funds to patients and caregivers facing a
cancer diagnosis so no family has to choose
between their health and their home.
Potential Patient Resources, Community & Support Networks
Lotsa Helping Hands
Lotsa Helping Hands provides a way to
organize and coordinate help for patients,
families, and caregivers. Examples of
support services include delivering meals,
organizing rides, covering childcare, and
sending automatic reminders about
appointments to the patients, their
families, and caregivers.
Your Caregivers and Family May Need Time and Support, Too
Research and Trials