Keeping track of everything
*Go to HealthCare.gov for additional information on
these and many more topics
Liver Cancer Groups
American Liver Foundation (ALF)
The American Liver Foundation (ALF) is the nation’s largest non-profit organization focused solely on promoting liver health and disease prevention. ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease. Additional information can be found at www.liverfoundation.org or by calling
1 800 GO LIVER (800-465-4837).
Blue Faery: The Adrienne Wilson Liver Cancer Association
Blue Faery’s mission is to prevent, treat, and
cure primary liver cancer, specifically
hepatocellular carcinoma (HCC), through
research, education, and advocacy. The
organization offers free HCC patient
resource guides, an online HCC patient and
caregiver community, an award for HCC
patients, and its website is translated into
Community Liver Alliance
Based in Pittsburgh, PA, the Community
Liver Alliance supports the community
through liver disease awareness, prevention,
education, research, and advocacy.
Global Liver Institute (GLI)
GLI is a nonprofit advocacy group formed by
patients and operating globally to provide
solutions to improve the lives of individuals
and families impacted by liver disease. To get
information you can use to learn about
healthy eating, simply download their
American Cancer Society
The American Cancer Society is a national
voluntary health organization made up of
medical professionals and lay volunteers
dedicated to eliminating cancer.
A Fresh Chapter
A Fresh Chapter's mission is to empower
people to redefine and rebuild their lives by
giving them the tools, support, and
community to thrive—whether living with or
Cancer Support Community
The Cancer Support Community offers
three areas of support: direct service
delivery, research, and advocacy. The
organization has an international network
of affiliates that offer social and emotional
support for people affected by cancer and
makes community support available
online and over the phone.
As a national nonprofit organization, Family
Reach is dedicated to removing the financial
barriers standing between cancer patients
and their treatment. Family Reach offers
financial education, financial planning,
resource navigation, and emergency relief
funds to patients and caregivers facing a
cancer diagnosis so no family has to choose
between their health and their home.
National Cancer Institute (NCI)
The NCI is the US government’s principal
agency for cancer research, information,
and training. NCI is part of the National
Institutes of Health, one of eleven agencies
that form the U.S. Department of Health
and Human Services.
National Coalition for Cancer
The NCCS is the oldest survivor-led cancer
advocacy organization in the country and is
committed to bringing about policy change
on the national level.
National Comprehensive Cancer Network
The NCCN is a nonprofit organization
comprised of 31 cancer centers in the
United States, most of which are designated
by the National Cancer Institute as
comprehensive cancer centers.
Potential Patient Resources, Community & Support Networks
Established in 1944, CancerCare is a
national organization providing free
professional support services and
information to help people with the many
challenges of cancer treatment.
Cancer Hope Network
This is a free one-on-one confidential
support to all people (patients, family, or
friends) impacted by cancer, along the entire
continuum from diagnosis through
Lotsa Helping Hands
Lotsa Helping Hands provides a way to
organize and coordinate help for patients,
families, and caregivers. Examples of
support services include delivering meals,
organizing rides, covering childcare, and
sending automatic reminders about
appointments to the patients, their
families, and caregivers.
Magnolia Meals at Home
Magnolia Meals at Home is a meal delivery
program that provides nutritious meals to
people with cancer and their loved ones in
certain areas of New Jersey, New York,
Connecticut, and Massachussetts.
Patient Advocate Foundation
The Patient Advocate Foundation is a non-
profit organization that provides case
management services and financial aid to
Americans with chronic, life-threatening
and debilitating illnesses.
Smart Patients—Liver Cancer Community
Smart Patients is an online community for
patients and their families so that they may
talk with and share experiences with others
who are similarly affected by liver cancer.
Your Caregivers and Family May Need Time and Support, Too
Informal Caregivers in Cancer (PDQ®)–
Family members and friends can be
supportive, but they may feel some of the
same stresses that you are experiencing.
Here is the link to information that may be
helpful for the caregivers in your life.
Liver Cancer Community
(hosted by Blue Faery)
Blue Faery hosts a private, online, HIPAA-
compliant forum for patients with liver
cancer and their caregivers where they
interact and support each other during their
Research and Trials
Blue Faery Clinical Trials
Listing of current liver cancer clinical trials.
Central website for finding current
Liver Cancer Connect
Clinical trials and news about liver cancer.
American Cancer Society (ACS)
The ACS is a national organization that
provides Information about liver cancer,
including risk factors, symptoms, how it is
found, and how it is treated.
GLI's Liver Cancer Glossary
GLI's liver cancer glossary provides an
easy-to-use list of many words and
phrases about liver cancer and its
treatment that you may find useful.