Your healthcare team and many advocacy groups
are here for support

A diagnosis of liver cancer may be difficult to hear. Understanding more about this disease
and adjusting to a new normal may help you feel more in control. Together, your healthcare
team, family, and community can help find new ways to support you, if you let them

Man with HCC and his wife seated in physician’s office waiting room, reading a pamphlet

Keeping track of everything

Staying on schedule and keeping track of doctors appointments, clinic visits, schedules for taking medicine,
and questions or concerns for your healthcare team are important habits. Here are some tips you may
find useful:

Many hospitals, clinics, and doctors’ offices provide easy-to-access patient portals where you can get
information, ask questions, and communicate with your doctors.

Writing things down on paper and keeping a binder containing all important medical information is another
way to keep track of appointments and information you want to remember.

Materials to help you stay on track

Download an information sheet
to fill in with your medical
details and care team

Download a side effect and
symptom tracker to use during
doctor visits

Download an appointment
tracker to keep track of doctor
visit details

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Download our One Liver to Love Conversation Cards
These cards include suggested talking points to support communication between patients and their caregivers, and patients and their healthcare providers

Descarga nuestras Tarjetas de conversación de One Liver to Love
En estas tarjetas se sugieren temas de conversación para favorecer la comunicación entre los pacientes y sus cuidadores, y entre los pacientes y sus proveedores del cuidado de la salud.

Tải ngay Card Hội Thoại One Liver to Love
Những card này gợi ý các thông tin trò chuyện nhằm hỗ trợ việc giao tiếp giữa bệnh nhân và người chăm sóc, cũng như giữa bệnh nhân và nhân viên y tế

The healthcare team: who they are and what they do

Internist A doctor who has special training in internal medicine. An internist works with adult patients to
prevent, diagnose, and treat diseases without using surgery.

Gastroenterologist A doctor who specializes in diagnosing and treating disorders of the stomach, intestines, and other
organs like the liver.

Hepatologist A doctor who specializes in diseases of the liver.

Radiologist A doctor who has special training in creating and interpreting pictures of areas inside the body.

Pathologist A doctor who examines the tissues in the body and performs lab tests that help other healthcare
providers make a diagnosis.

Interventional Radiologist A doctor who performs minimally invasive treatments using imaging such as CT scans, ultrasound, MRI,
and/or repeated X-rays called fluoroscopy to help guide procedures.

Medical Oncologist A doctor who has special training in diagnosing and treating cancers in adults using chemotherapy, hormonal
therapy, biological therapy, and targeted immunotherapy.

Surgical Oncologist A surgeon who has special training in performing surgical procedures in people who are suspected of having
and/or living with cancer.

Nurse Practitioner A registered nurse who has additional education and training in how to diagnose and treat diseases.
In cancer care, a nurse practitioner may help manage the primary care of patients and their families. There
are also advanced practice nurses (APNs).

Patient/Nurse Navigator An experienced professional who guides patients and their families through complex medical systems
and helps them work with the rest of the cancer care team to overcome barriers to care. They can
connect patients and their families to information and resources to help them make informed decisions.
A nurse navigator assists patients from initial diagnosis throughout treatment and follow up.

Therapist/Social Worker A professional who specializes in counseling, evaluating and providing services to people who may have
emotional, social, family, or other problems or concerns; therapists and social workers may work in
hospitals, clinics, or private practices within a city, town, or community. Some of these professionals
specialize in helping people with cancer.

Some challenges go beyond your healthcare needs

The following organizations can help you with transportation to get to your appointments or lodging for you
or your caregivers if your healthcare team requires that you stay in the hospital overnight or nearby for your
medical appointments.

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Financial/Insurance Assistance

The following organizations can help you with financial assistance, insurance, and insurance-related
questions (for example, enrolling in an insurance plan, questions about a current insurance plan,
appealing marketplace decisions, and more*).

*Go to for additional information on
these and many more topics

Educational resources and support available for patients and
their families.

Your family, friends, and caregivers can be advocates for you and may provide you with support to
help you adjust to a “new normal.” Listed below are organizations, resources, and support groups
offering education, information, assistance, and advocacy.

  • Liver Cancer Groups

    American Liver Foundation (ALF)

    The American Liver Foundation (ALF) is the nation’s largest non-profit organization focused solely on promoting liver health and disease prevention. ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease. Additional information can be found at or by calling
    1 800 GO LIVER (800-465-4837).

    Blue Faery: The Adrienne Wilson Liver Cancer Association

    Blue Faery’s mission is to prevent, treat, and
    cure primary liver cancer, specifically
    hepatocellular carcinoma (HCC), through
    research, education, and advocacy. The
    organization offers free HCC patient
    resource guides,
    an online HCC patient and
    caregiver community, an award for HCC
    patients, and its website is translated into
    12 languages.

    Community Liver Alliance

    Based in Pittsburgh, PA, the Community
    Liver Alliance supports the community
    through liver disease awareness, prevention,
    education, research, and advocacy.

    Global Liver Institute (GLI)

    GLI is a nonprofit advocacy group formed by
    patients and operating globally to provide
    solutions to improve the lives of individuals
    and families impacted by liver disease. To get
    information you can use to learn about
    healthy eating, simply download their
    nutrition app.

  • Cancer Groups

    American Cancer Society

    The American Cancer Society is a national
    voluntary health organization made up of
    medical professionals and lay volunteers
    dedicated to eliminating cancer.

    A Fresh Chapter

    A Fresh Chapter's mission is to empower
    people to redefine and rebuild their lives by
    giving them the tools, support, and
    community to thrive—whether living with or
    beyond cancer.

    Cancer Support Community

    The Cancer Support Community offers
    three areas of support: direct service
    delivery, research, and advocacy. The
    organization has an international network
    of affiliates that offer social and emotional
    support for people affected by cancer and
    makes community support available
    online and over the phone.

    Family Reach

    As a national nonprofit organization, Family
    Reach is dedicated to removing the financial
    barriers standing between cancer patients
    and their treatment. Family Reach offers
    financial education, financial planning,
    resource navigation, and emergency relief
    funds to patients and caregivers facing a
    cancer diagnosis so no family has to choose
    between their health and their home.

    National Cancer Institute (NCI)

    The NCI is the US government’s principal
    agency for cancer research, information,
    and training. NCI is part of the National
    Institutes of Health, one of eleven agencies
    that form the U.S. Department of Health
    and Human Services.

    National Coalition for Cancer
    Survivorship (NCCS)

    The NCCS is the oldest survivor-led cancer
    advocacy organization in the country and is
    committed to bringing about policy change
    on the national level.

    National Comprehensive Cancer Network

    The NCCN is a nonprofit organization
    comprised of 31 cancer centers in the
    United States, most of which are designated
    by the National Cancer Institute as
    comprehensive cancer centers.

  • Potential Patient Resources, Community & Support Networks


    Established in 1944, CancerCare is a
    national organization providing free
    professional support services and
    information to help people with the many
    challenges of cancer treatment.

    Cancer Hope Network

    This is a free one-on-one confidential
    support to all people (patients, family, or
    friends) impacted by cancer, along the entire
    continuum from diagnosis through

    Lotsa Helping Hands

    Lotsa Helping Hands provides a way to
    organize and coordinate help for patients,
    families, and caregivers. Examples of
    support services include delivering meals,
    organizing rides, covering childcare, and
    sending automatic reminders about
    appointments to the patients, their
    families, and caregivers.

    Magnolia Meals at Home

    Magnolia Meals at Home is a meal delivery
    program that provides nutritious meals to
    people with cancer and their loved ones in
    certain areas of New Jersey, New York,
    Connecticut, and Massachussetts.

    Patient Advocate Foundation

    The Patient Advocate Foundation is a non-
    profit organization that provides case
    management services and financial aid to
    Americans with chronic, life-threatening
    and debilitating illnesses.

    Smart Patients—Liver Cancer Community

    Smart Patients is an online community for
    patients and their families so that they may
    talk with and share experiences with others
    who are similarly affected by liver cancer.

  • Your Caregivers and Family May Need Time and Support, Too

    Informal Caregivers in Cancer (PDQ®)–
    Patient Version

    Family members and friends can be
    supportive, but they may feel some of the
    same stresses that you are experiencing.
    Here is the link to information that may be
    helpful for the caregivers in your life.

    Liver Cancer Community
    (hosted by Blue Faery)

    Blue Faery hosts a private, online, HIPAA-
    compliant forum for patients with liver
    cancer and their caregivers where they
    interact and support each other during their
    cancer journey.

  • Research and Trials

    Blue Faery Clinical Trials

    Listing of current liver cancer clinical trials.

    Central website for finding current
    clinical trials.

    Liver Cancer Connect

    Clinical trials and news about liver cancer.

  • Disease Information

    American Cancer Society (ACS)

    The ACS is a national organization that
    provides Information about liver cancer,
    including risk factors, symptoms, how it is
    found, and how it is treated.

    GLI's Liver Cancer Glossary

    GLI's liver cancer glossary provides an
    easy-to-use list of many words and
    phrases about liver cancer and its
    treatment that you may find useful.

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